We are delighted to launch our new website, created to better support everyone affected by Polyposis Syndromes. The Polyposis Support Group has long been a source of information, connection and encouragement for patients and families – and our new site is designed to make it even easier to find what you need, when you need it.

Our new website has a clearer structure, with dedicated sections on the different Polyposis Syndromes, what they mean, and where to find help. We’ve also made it simpler to learn how you can get involved, whether that’s through fundraising, donations, or offering your time and support.

You’ll find:

• More information on Polyposis Syndromes, their management and resources available.
• Information on our buddy system where you can help others with a diagnosis like you
• Helpful links to trusted organisations and information sources.
• A new blog, where we’ll share updates, patient stories, and the latest news from the Polyposis community.

We hope the new site will be a welcoming space where people living with Polyposis Syndromes – and their loved ones – can find reliable information and feel connected to others who understand.

Upcoming Event: Polyposis Syndrome Patient Information Evening

We’re also pleased to invite you to the Polyposis Syndrome Patient Information Evening (Online) taking place on Wednesday 12th November 2025, from 17:30 – 19:30 (5:30 – 7:30pm).

This online event is open to patients with a diagnosis of a Polyposis Syndrome and their families, offering a chance to learn more, ask questions, and hear from experts in the field.

To find out more or register to attend, please visit our Events page.

We’d love your feedback

As we launch this new site, we’d love to hear what you think. Your feedback will help us continue improving the information and support we provide. Take a look around, explore the new pages, and let us know what’s most helpful – and what else you’d like to see.

Thank you for being part of the Polyposis Support community. Together, we can continue to raise awareness, share knowledge, and support everyone affected by Polyposis Syndromes.