Any questions? We’ve got you covered!

The Polyposis Registry

Have any questions? The Polyposis Registry look after people with a polyposis syndrome and their relatives throughout the patient journey. They also provide education for healthcare professionals and the public and actively carry out research.

Interested? Click the button below to find out more!

The Patient Journey

What happens following referral? Click the links below provided by the PolyPosis Registry for more information on what your Polyposis journey could look like.

Genetic Testing for Polyposis Syndromes

Recommendations as a result of genetic testing in children and others.

Q&A panel at St Mark’s Information Day

Take a listen to the latest Q&A session from 2019’s Information Day.

St. Marks Information Day Research 2019

Want to hear about all of the latest research happening behind the scenes in 2019?

Young people

A message from Dr. Warren Hyer, Consultant Paediatrician and Consultant Gastroenterologist at St Marks Hospital.

Feeling dehydrated? Have some E-Mix!

St Marks famous Electrolyte Mix may be the one for you!

Bowel Management with FAP

Ellie Bradshaw (CNS Biofeedback), discusses discuss some dietary modifications which can be used to regulate bowel function and strategies for bowel management such as managing frequency, urgency and incontinence.

Need help with nutrition?

Take a look at PolyPeople member Rachel’s suggestions.

What is a Desmoid Tumour?

Everything you need to know about Desmoid Tumours!

Useful links

(Please be aware we are not responsible for the content on any external websites to which we provide links)


Polyposis Patient survives on the generous donation of our committee members, volunteers and the public to continue to strive to support all patients affected by the disease.

If you are able, please donate what you can by clicking one of the buttons below. You can donate a one-off amount or subscribe monthly amounts. Thank you for your support.

Fancy volunteering?

If you are able and interested in being involved with patient support please contact us and find out about

Talking Together, our buddying system to help support new and existing Polyposis patients.

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