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Welcome to our new website
We are delighted to launch our new website, created to better support everyone affected by Polyposis Syndromes. The Polyposis Support Group has long been a source of information, connection and encouragement for patients and families – and our new site is designed to make it even easier to find what you need, when you need…
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Staying hydrated after surgery: Introducing St Mark’s E-Mix!
If you have had surgery as part of your management for a polyposis syndrome, you may find that keeping well-hydrated is more challenging than before. This is because bowel surgery can sometimes reduce the body’s ability to absorb fluids and salts effectively. Dehydration can make you feel tired, dizzy, or unwell — but there are…
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FAP – What is a desmoid tumour?
In this article Sarah-Jane Walton (Desmoid researcher at The Polyposis Registry, St Mark’s Hospital) outlines how desmoid tumours present in familial adenomatous polyposis (FAP). Desmoids are benign (non-cancerous) tumours/lumps that are seen fairly frequently in patients with familial adenomatous polyposis (FAP). Up to 15% of patients with FAP develop a desmoid tumour. They can occur in anyone but…
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