OUR HISTORY
Polyposis Patient was established in November 2008 following a suggestion from Professor Sue Clarke at St Marks of the benefits of a support group a patient support group they could approach for comments on funding applications to support research and development. A group of Polyposis patients volunteered to create such a group and Polyposis Patient was born!
Polyposis Patient supports St Mark’s and the Polyposis Registry with contributions and involvement in their annual Information Evening. We have contributed towards the cost of developing the Polyposis App (information for health professionals) and we have backed funding applications when requested.
We are proud of Polyposis Support’s activity, “Talking Together”, the 1:1 support we can give to those affected by a polyposis diagnosis. Whether it’s at the point of diagnosis, pre-op, immediately post-op or many years later, polyposis is a relatively rare condition and living with a diagnosis can be a lonely place to find yourself.
Whether you need some help yourself or would like to provide 1:1 support from your own experience, please do get in touch.
OUR OBJECTIVES
To provide support and information for those affected by Polyposis syndromes (patients, families and friends) by being a trusted point of contact: at diagnosis, pre-op, post-op, ongoing.
To support St Marks Hospital and the Polyposis Registry in applications for funding for research, events or equipment.
To raise awareness of the Polyposis syndromes (especially amongst GPs).
HOW WE CAN HELP YOU
We offer the following support:
- Patient info and family support.
- Social events and fundraising.
- 1:1 telephone support with a “buddy”.
- Information days and online events.
HOW YOU CAN HELP US
We thank you for any support you can give, and here are the ways you can help:
- Donate a one-off payment or regular donation!
To help us continue providing support and invest in new ideas. - Become a “Talking Together” volunteer
Help provide 1:1 support to others who have a diagnosis like you. - Volunteer
Help the team at Polyposis Patient with: fundraising, events or ideas for growth. - Share your story
Help others understand the different paths that polyposis patients might experience.
OUR TEAM
Donate
Polyposis Patient relies on the generosity of our committee members, volunteers, and members of the public.
Volunteer
Volunteering with Polyposis Patient allows you to make a real difference for people affected by polyposis syndromes.
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