- Husband and Daughter FAP patients
- Understands the effects on family
- Grateful to St Mark’s and Polyposis Registry
- Hopes to help families of patients
I was married to Peter the original chair of Polyposis Patient and before he sadly passed away in January 2018, he made the Polyposis unit and his family promise to carry on his work to support patients. So here I am as chair!
I knew Peter from the start of developing his symptoms of FAP and have been through all his four major surgeries and recovery with him.
“I understand the support and care that’s needed to get a patient through.”
I was with my daughter Elissa from diagnosis to surgery and at every regular appointment at St. Mark’s and helped with an added complication of her needle phobia!
Through Polyposis Pateint, I can offer to support any family member who finds themselves in a similar situation to myself. If you want to talk about the experience of children being tested and given their diagnosis, understanding of the effects of Polyposis Syndrome on the family and how you cope with any surgery, manage the condition and the psychological effects of the syndrome, then please get in touch.
“I am very grateful to the wonderful work they do at St Mark’s and the Polyposis Registry, who are always ready with advice.”