PolyposisPatient is a trusted support group for those affected by Polyposis syndromes. We are dedicated to enabling access to the most up to date, useful and relevant help and information through supporting St Mark’s Hospital in their world leading Polyposis work.
“Patient organisations are crucial – providing mutual support and information for patients, key feedback to clinicians, and potentially powerful lobbying groups. More patients with polyposis have been looked after at St Mark’s than at any other hospital in the world, bar the Cleveland Clinic in the USA, making it a natural focal point with sufficient numbers of people with these rare conditions to enable Polyposis Patient to be launched.”
Professor Sue Clark, St. Mark’s Hospital
Consultant Colorectal Surgeon & Director of the Polyposis Registry
WE NEED YOUR SUPPORT
Our PayPal subscription page offers the community a means to support the hard work of St Marks Polyposis Registry and their associated research teams by signing up to give a one-off donation or to give £5 or more as a monthly or annual subscription.
As well as supporting St Marks Polyposis Registry, funds raised will help to support the patient groups and families affected by Polyposis syndromes. Most recently we have donated £1,000 of funds raised to create the PolyPosis Registry App to help healthcare professionals worldwide in the diagnosis and treatment of Polyposis syndromes.
SYNDROMES
Find out more about the different types of Polyposis syndromes that we support.
Familial Adenomatous Polyposis (FAP)
Juvenile Polyposis
MUTYH Associated Polyposis
Peutz Jeghers Syndrome
Serrated Polyposis Syndrome (SPS)
Our volunteers
Find out more about the team behind Polyposis Patient and how you can join us or volunteer with our buddy system, Talking Together.
News
- Welcome to our new website
We are delighted to launch our new website, created to… - Staying hydrated after surgery: Introducing St Mark’s E-Mix!
If you have had surgery as part of your management… - FAP – What is a desmoid tumour?
In this article Sarah-Jane Walton (Desmoid researcher at The Polyposis Registry, St Mark’s…
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Polyposis Patient relies on the generosity of our committee members, volunteers, and members of the public.
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Volunteering with Polyposis Patient allows you to make a real difference for people affected by polyposis syndromes.
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